Who cares?

I am thinking of a dear patient of ours who lives in a memory care facility here in North Texas.  When she came on the Texas Hospice service she could walk but only with assistance.  Now she is wheelchair confined and requires someone to feed her three times a day.  She is exhibiting the classic mental and physical deterioration that dementia inflicts on its victims.

Her husband still dotes on her.  He feeds and bathes her daily.  He works the facility staff such that they don’t miss any detail of her care.  What love!  What romance!  If you are a woman you know what I mean.  What greater evidence of committed love is there than a relentless caring for a life-partner at the end of life?

Be honest with me.  Do you enjoy spending time in nursing facilities?  When you visit a friend or relative residing there do you strategize your exit before you enter the building?  Does the environment depress you?

Let’s go a step further.  Do you admire the amazing folks who work at these facilities?  Does it boggle your mind that anyone would feel a calling into that work?

My answer to all these questions is yes.  Yes, yes and yes.  I remain an undiluted admirer of the wonderful people who love on the seemingly unlovely.  Let me insert a caveat here, though.  Having spent ten years in nursing facilities I no longer find the smells and atmosphere overwhelming negative.  The acts of love and service occurring in those buildings (most of them) overshadow what we find distasteful.

The Chinese government announced last week a new law that would require individuals to provide comprehensive care for their elderly parents.  The urbanization taking place in the country on the other side of the world has been undermining a strong tradition of elder care.  Youths are moving into cities.  Parents and grandparent remaining in the rural towns are fending for themselves.

Caretaking an older and infirmed human is not the stuff that makes Hollywood blockbusters.  We won’t pay to see Brad Pitt feeding a relative suffering from dementia.  We prefer a hero the likes of Odysseus or even Tom Cruise’s Maverick in Top Gun.

Other cultures behave differently.  I learned recently by observing some San Antonio friends of Texas Hospice that the tradition of elder care is very strong in Bulgaria.  Parents and grandparents expect younger married couples to move in with them and at some point provide the assistance aging human beings require.

Apparently this activity is as old as humanity.  So are attempts to shuck the responsibility.  Jesus chastised the Pharisees for forsaking their elder care duties under the guise of religious contribution.

Former Attorney General John Ashcroft said, “As you devalue culture you proliferate laws.  For law is the only restraint left.”  I think that is pretty right on.  And convicting.  I’m not sure how well I participated in my grandmother’s end-of-life care.  You know, I’m a busy person . . .

Law students learn that laws uphold the bare minimum of ethics.  Our city ordinances don’t require us to give our bus seat to an older person, but we should.  The laws of the nation don’t require us to spend the resources and time to care well for our infirmed loved ones, but we should.

So who does care?  In one facility close by, it is a a doting husband of 55 years.  In China, it will be everyone as required by law in China.  In every portion of God’s blue marble it should be all of us, regardless of the laws.

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All very well put. I volunteer with a different Hospice and nursing home here in North TX, and none of my friends or family understand how I can do it. It is true, as you said, of the "beautiful acts of service overshadow ..." I believe we have a choice, as to how we view things; and that if more people would simply take a moment to view the depths and shades of those around them, they would find beauty staring them in the face. We are all someone, and we all deserve respect and dignity, especially at our end of days! .....wonderful blog, by the way....brandie

Thank you, Hortensia. Bless you.

Thank you, Brandie, for the nice comment. Keep doing what you are doing, and let me say that I appreciate the comment.

Dr. B I seams as if the kids here in America only want to control what others do for their parents that are in any type of elderly place. As long as they don't have to deal with mom and pop themselves. I don't think this is what God meant! This is where I am following my calling. I am a maintance person for SFV. My residents say they are only leaving there feet first. So I give all my experiance and human realations skills whole heartedly just to help the elderly. like from a repaire job to helping them set up their tv. I show kindness and give huggs and hand shakes. That are seldom recieved. I believe God wants us show the elderly kindness and affection. I don't like the feeling of being left out and alone. Don

Don, I've been to St. Francis Village several times visiting patients. Wonderful place. I would encourage you to keep being Jesus to the great folks living out there. You are fantastic example. Dr. Byrd

Brian, thanks for taking the time and for caring enough to write these sentiments. You've certainly touched on a vitally important subject for our society. I finished reading your comments deeply challenged. Fortunately, I've had several significant role models in life who've chosen to offer care and concern just as you described. Thanks again. Ron

Thank you, Ron, for your thoughtful response. My mom and aunt visited their mother everyday for ten years while she lived in living care facilities. It was beautiful. She was blind and couldn't walk, but her mind worked well until the last 6 months of her life. My mom would read Hank the Junkyard Dog and scripture to her. Fortunately, I was able to get over to see her from time to time. At every visit she tell me that the most important thing in life is knowing Jesus. She would tell this wonderful truth to my kids, without fail, everytime they came as well. It was a rich time for us. I heard Greg Mortenson talk at TCU last week. Greg is the builder of schools for girls in the remote Pakistan and Afghanistan areas where poverty, warrior cultures, and strict Islamism make life particularly difficult for girls and women. He also authored the best-seller, Three Cups of Tea. Great read. Greg mentioned that during his speaking around our country he always asks children how many of them could tell stories about their grandparents' childhood. Very few can do that. That changes, however, in the areas where he does his work, where community is more accessible, and grandchildren live in quarters with siblings, parents, aunts, uncles, cousins and grandparents. All of those kids know well the stories their grandparents tell. Bless you, Brian

Hi "Dr. Brian" - The older I get and the more life I observe, the harder it gets to hear very young people speak of boyfriends and girlfriends with such terms of flattery because of roses or dinners out or Valentine's candy. I'm not a bitter 50 y/o but one who now has a different view on life. I watched the sweetest love story during my lifetime between my parents during my mom's years of dementia. My dad fed her, bathed her, cleaned her from incontinence, administered her meds, dressed her, hugged her, and told her he loved her, and that's just part of all he did. When asked how he could keep going, he would say "she would have done it for me." Now THAT's true love. My best to you. Candy --- www.allthingsdementia.com

Cathy, Yes! That is a wonderful love story, and such a legacy for you. Thank you for sharing with me. Younger people are just as deep and in need of connection and meaning and you and I have ever been, though their techniques are different. It reminds me of the church music debate. I know some wonderful folks who believe that only hymns meet the church criteria. They find band music wholly inappropriate for worship. But I also know younger believers, seekers of truth, workers for justice, and fighters of poverty, who worship like their pants are on fire. . . Band music blaring. A handful are living now in Haiti fighting Cholera, and showing the lost a way that is worthy of them, not imposing, but proposing true truth. I think their challenge as their parents age will be that elder care is not as exciting or news-worthy as third-world ministry. Thanks again, and keep up the good work on http://www.allthingsdementia.com. Brian

Your comment in your blog regarding the Chinese caught my eye. I had gone internet surfing a few weeks ago to see just "how" the Chinese culture treats their older adults (in the event they take over world ha ha and I come under their rule as a senior citizen. Prior to their newly found commercial and technological prosperity they valued these familial relationships very highly. My concern is that these same forces have been whittling away at our younger generations for years here in the U.S. Soon I fear, the only way grandma will get a visit from her kids and grandkids is if she is signed up on facebook.

Great take, Stuart. Though, I think the lack of attention to our elders goes way before Gen Y. My busy-ness diverted my attention from Grandma as much as any iPod. The baby-boomers brought in privacy fences which kept us in and community out. We are certainly a nation of rugged individualists, a unique distinction in the world, full of advantages, and yet one that drives us into solitude. Caring for elders doesn't mesh well with individualism. Please keep the comments coming. I love em. Dr. Byrd

It's nice to read such an encouraging blog, even better to know that they're still some doctors who do believe in God and best yet--that you're my doctor! Marilyn

Thank you, Marilyn. Bless you. Dr. Byrd